Haven HouseUnited Kingdom United Kingdom
Supporting families and cares for children and young people with life-limiting and life-threatening conditions life-threatening conditions.
Haven House Children’s Hospice (Haven House) cares for children and young people from birth to age 19 who have life-limiting and life-threatening conditions and who are unlikely to reach adulthood. In the UK, 49,000 children under 18 live with a life-limiting or life-threatening condition but still no adequate public care services are available for those children and their families. Haven House aims to ensure that all children in North and North-East London, West Essex, and East Hertfordshire who are life-limited or who have a range of disabilities and complex health issues, together with their families, are offered a range of care and health services which respond to their individual needs. In partnership with health and social care providers, Haven House has supported over 650 families, providing the highest quality palliative and holistic care services to children as well as support groups and therapy for the emotional needs of parents and siblings.
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The Children Program provides a combination of clinical and non-clinical services. Over last year, 353 children and young people benefited from Haven House services. The services are designed to provide targeted social and health support to children including respite care, symptom control care to prevent hospital admissions or reduce the length of a hospital stay, step-down transitional care to facilitate transition from hospital to home as well as palliative care for neonates, children and young people who are reaching the end of their lives. In addition, Haven House provides music therapy, physiotherapy and therapeutic yoga to children and young people as well as specialized toys and equipment.
Haven House Children’s Hospice soutient les familles et prend en charge les enfants et jeunes adultes en soins paliatifs dans la région au Nord et Nord-Est de Londres, West Essex et East Hertfordshire.
Haven House empowers parents to play an active role in their children’s care and treatment and it supports them at each stage of their child’s journey through different programs such as respite care, education programs, peer support groups, complementary therapies and post-bereavement services.
The Buddies support group is open to 5-18 year olds who have siblings that are supported by Haven House. The group meets regularly throughout the year to enjoy a variety of activities and outings. As well as having fun, the support group provides an opportunity for siblings to discuss common fears, joys, and concerns and for some to share their feelings around grief. Last year, Haven House provide 102 one-on-one sibling support sessions